Light therapy update

Now that I have been having light treatment for a few weeks I thought I would give you guys a short update.

It has been an odd experience really. After the first couple of times I noticed that my face was becoming irritated and blotchy which is completely out of the ordinary as I don't suffer from psoriasis on my face.
I raised this with the nurse at my next appointment. She looked me over, looked a bit puzzled and then took a sharp intake of breath as she realised what was happening (I expected a little light bulb to appear above her head). "You're wearing make-up!" she said as if this was meant to mean something to me. Well it turns out that she had neglected to tell me I am not to wear any make-up, perfume or deodorant and also that I am not to wash my hair or body the day of my treatment due to the perfumes in the product and how it reacts in the machine. I'll be honest I didn't really ask why.

So from that session onward I now shower the night before and have to go to the hospital bare faced with no deodorant on... FYI if you ever see me at the hospital when I am in this state please don't try to talk to me, the pure humiliation of not wearing make-up renders me blind to other people... well except the man who was screaming at me this morning because I would not let him jump the car park queue (a story for another time).

Oh that reminds me I realised that my early morning appointments mean I miss the horrendous parking queues so yay I always get a space straight away.

So the treatment is going ok. I am about 6 sessions in (I have already lost count) and am starting to see some improvement already. This has amazed me considering my sessions started with 36 seconds in the machine and each time it goes up 20%. Today I was in there for 1 min 27 sec and this evening I actually do look sunburned.

The real downside is the itchiness. The nurse had warned me that it would get worse before it got better and she wasn't wrong. Even as I type this I want to just rip my own skin off but I will perservere as it will be worth it.

***Don't scroll down any further if you don't like seeing gross stuff.***
The pictures below are from session 1 to session 6. The change is subtle but trust me it is so much better already


Session 1

 Session 6

Accidental hobby

I have inadvertently taken up oil painting.
Yep, that is right, due to a slight misunderstanding at Christmas I acquired all the gear so I thought "why not"

A friend of mine moved into her new flat last year and showed me the most beautiful canvas paint by numbers that she was doing. I loved the idea of having art on the wall that you had done yourself.

So after a huge house renovation/ extension I have a lovely room that is crying out for some art of just this type. So for Christmas I asked my brother for my own paint by number canvas.

It is still unfinished but this is what I have done so far

On Christmas morning I was presented with an oil painting kit from my husband which confused the hell out of me. To which he replied that my brother had told him about the painting I had asked for and he completely got the wrong end of the paint brush and thought I had wanted to take up oil painting.

Having almost completed my stag picture I decided to give it a good go. Best case I discover a new talent or at least a hobby I enjoy and worst case I have just wasted a bit of paint.

I found an old easel laying around (seriously did) and even found a small canvass unused (why do I have this stuff laying around in my house?). I then found a picture online that I thought looked simple and loved the colours so went about painting.

The first thing I did was to paint the background however I did not know what I was doing so did not use any thinners and just piled the oil directly and thickly to the canvas. I had no idea this would take days to dry...

I then went about completing the tree. It is far from perfect and looks ok if you stand a distance away but I am really pleased with my first attempt

I have since been reading up and even got a book on oils, which is one of the more difficult paints to master apparently (typical to start at the highest level). I know all the things I did wrong and have a couple more pictures and techniques I want to try so watch this space.
The biggest problem is now finding time to do it

Photo therapy during austerity

If you read my last post you may well be wondering what on earth photo therapy (light treatment) is. Well let me explain.

Light therapy, also known as photo therapy, is the use of ultraviolet (UV) light for its healing effects. Photo therapy has been used worldwide for nearly a century to treat chronic skin conditions such as psoriasis, vitiligo and severe eczema.
While many treatments decrease the overall immune system, UV light can be used to decrease the local immune system in the skin. In conditions such as psoriasis, light therapy can also slow down the development of thick, scaly skin.

Yesterday I had my induction with the team at Frimley park hospital. After an HOUR trying to park I arrived slightly late for my appointment but was greeted by a lovely nurse who said not to worry.

This nurse then spent the next 45 minutes going through all the information about the therapy, what to expect, do's and don't's etc

There was a lot of information but my biggest take away was that one of the side affects is that there will be an alternation in the skin pigments... in simplified English I will get a tan!!! awesome :)

The light used is similar to those in sunbeds however the amount of UV you get from them is around 20% and in these sessions I will get closer to 80%. I was told I would be having 30 treatments and that most people see significant changes by session 15.
90% of patients respond really well to the treatment and are cured with only a small number returning at a later date.

The nurse then did a patch test where she put this wand of light on my back (a clear bit of skin) and left what I can only explain as a number of mini crop circles of varying redness. Apparently this shows them what level of power my skin will be able to take.

The treatment

Today I went back for my first treatment. I couldn't sleep last night, I was just so excited. This is something I have dreamt about and fought for over the last 6 years so it was a bit like Christmas day.

It only took 40 minutes to park this morning which is so frustrating when I am only going to be in treatment for a few minutes.

I went in and saw the lovely nurse again. She checked the patch test and seemed happy with the result. We discussed the various patches around my body and what standing position I should take in order to reach the most patches of psoriasis. We settles on a weird, legs apart and hold boobs up (I have a patch under my boob). I looked ridiculous.

I was then sent behind a curtain to undress - completely. I adorned my amazing mini goggles and climbed into the machine. The machine, by the way, looks just like an upright sunbed but there is a little window at head height (for the nurses to check on you), also the lights seemed red but this could be the colour tinting from my goggles.

I took my weirdly pre-agreed stance and shouted to the nurse that I was ready. The nurse came in and turned on the machine which got warm very quickly. I just kept thinking of all the other psoriasis riddled people who had stood here before me and shuddered at the thought (not to self, take sanitiser next time).

No sooner had it started than it stopped. 34 seconds!!! 34 bloody seconds, almost doesn't seem worth undressing for. I have been told the time will increase with each visit so probably another week and a half before I make it to 1 minute Lol!

I was then told to dress, sign the form and leave. I walked out of the room a bit rosey cheeked and dishevelled and wondered what the other people in the waiting room thought had just gone on... I always try to guess why people are there when in a medical waiting room, It is a rather morbid guessing game but it keeps me entertained.

My next session is on Monday and then again on Thursday for another 29 sessions. All I can think about though is how to avoid the traffic and parking misery for the next 15 weeks. May need to park miles away and walk in.

This is my arm after 1 session, I will keep a record of the changes over time.